Supported self-management interventions, which assist individuals to understand and manage their own health condition, have a strong evidence base for chronic physical illnesses but are not often used for long-term mental health conditions. This research was conducted to co-design a self-management intervention for mental health conditions and test the intervention with end users.
The research highlights four key findings: (1) self-management tools should be flexible and well-integrated into mental health services; (2) language is important and preferences vary between individuals; (3) self-management should have the option of being supported when delivered in services; (4) digitising the intervention could allow for greater customisation and features based on the individual’s unique preferences and needs.
When designing self-management mental health interventions, involving end-users from the beginning is vital to address their need for personalised and customised interventions, and choice in how interventions are delivered. A co-production approach to research and design is also recommended, where lived experience is central to informing the planning, design, delivery and evaluation of the intervention.
An updated version of this paper has been published as Milton A, Ozols AMI, Cassidy T, Jordan D, Brown E, Arnautovska U, Cook J, Phung D, Lloyd-Evans B, Johnson S, Hickie I, and Glozier N. (2024) Co-Production of a Flexibly Delivered Relapse Prevention Tool to Support the Self-Management of Long-Term Mental Health Conditions: Co-Design and User Testing Study. JMIR Formative Research, 8, e49110. DOI: 10.2196/49110